10.5 months off steroids

New Years Eve was a knee to the balls!

Week 45 of topical steroids: Kline had very rough week and a terrible new years eve....kline started to ooze again around his neck....

the bottom of his ears are very bad, hard to see here but there is just a huge scab on the bottom of each year. a big place we used roids

and the damn feet.....we never used steroids here but since klines feet got infected back in oct.  they are such a bad spot..so itchy.

who gets scabs on the bottom of the feet?? Kline! that's who!

So, even though this week has been hell....we spent many nights in the bath till midnight and back in at 4 am, he had an amzing day today!

I went for my first therapy session, which we will work on my jekyll and hyde emotions, and kline got to.....go to the kids meuseum with his best friend and grammy, go to lunch and the train museum and even go to the dairy free sorbet shop!!!!! yeah, he was out of the tub till just now at, drum roll please...............6PM!!!!!!  18 freaking hours out of the tub!!!!!!!

I hope that only more and more days will be like this and I hope my therapy can get me out of the angry sad fog I can not get my self out of.  He is healing, slowly for sure, but healing! I can not wait for the day he is all better...he may still have eczema, but the day the itchy bastard leaves for good.....I will crap my pants , do a dance, and run through the streets naked!!!!  And ofcourse I'll vlogg it all for you! lol

Happy itchy bastard free 2013!
xxoo
Loren

Is there an ejection seat...because I am fucking sick of this ride!

Kline 44 weeks off topical steroid addiction withdrawal!

 Kline sledding in our back yard!

Kline has had a terrible few weeks, he had a good day yesterday followed by the itchy bastard coming back full force all night long and back again today.  The breaks almost fuck me up more than not getting them..I see the light at the end of the tunnel, just to be hit by a Mac truck before we reach it. 

Christmas was pretty much a bust...he had a few little breaks to open present and sled, but other than that all the adults were crying on Christmas, and they were not tears of joy! Apparently, Santa couldn't give us what we asked for!!!!

I know one day he WILL be better, but WTF?  I thought at 10 months his life would be a little more "normal".  What ever that is!?!?

So, 2012.... I am done with you, don't let the door hit you in your ass on the way out!

Here's to a happy, healthy, itch free, skin issue free, 2013!  2013, please don't let us down!!!!!!!
xoxo
Grumpy Loren

Honey, please try not to Piss mommy off!

                                                            GRAMMY AND KLINE

                                              MOM AND DAD'S 80'S PART GET UP

Kline is  43 weeks off topical steroids and it has been a hell of a week.

He has been flaring again, I think because he had a bit of a cold, cough with the damn wheeze.
He's been back in the bath nearly all day, all week long.....except for a great night we had when we went to a local ski resort and saw Santa!!!

I think I am having some kind of post traumatic stress disorder.  Unfortunately, we haven't even gotten to the post part yet! I can not tolerate loud noises at all...the dog barks, I want to scream.  Kline yells "ice pack" I want to jump out of my skin. I hope by the time Kline is better I am not  so far gone down the rabbit hole of depression and anxiety that I can't climb out of it. 

I am having anger issues too....very short temper with pretty much everyone that is close to me, aka hubby, Kline and my parents.  So, I am looking into a therapist to help me work though this crap....watching your baby being tortured all day and night for a year, can wear you the crap down!!! And I think I have hit my bottom.....the antidepressants are not working as well because I changed to a different one and have not yet adjusted.....so of to therapy I go. 

I am amazed at how well my baby copes with this stuff.......way better than I am or my hubby!  He is still in a good mood most of the time unless he is uncontrollably itchy and in pain...and he is still just as ornery as ever.  So, as long as I don't mess him up too much, I think he will come out of this ok mentally! ;-)

My hope is that we will be so much stronger from this hell.....we will be a more tight knit family...and we will be happy and itch free, able to Concur anything life throws at us.  I hope that Kline will be an even more kind person and accepting of others with issues of their own. 

If you have been reading my blog you know I am not  religious but I hope that everyday I can be more like Jesus and less like Satan! Lol

Signing off and have a very happy itch-free holiday!  As Kline said the other day

"Merry ITCHY Christmas!"

He also told me, "Santa wasn't gong to bring me any presents because I am mean to him!" NICE!

Xoxoxo Mama Satan! ;-)

42 weeks off topcail steroids and pictures with santa!!

Kline is 42 weeks off topical steroids today...and although his still gets the insane itch fits, he is getting more and more breaks!  Thank goodness for the breaks.  this has been the hardest thing we have ever done but the breaks let me know we are for sure on the right path. His skin is starting too look better and better! Thanks all for the support through this hard hard time


Our thoughts go out to the families in Connecticut that lost their babies in the terrible school shooting! What is going on in this world!Those families will never be the same again.  unimaginable~    xoxoxoxox loren

kline and I rap about red skin!

My insanity is completely gone!


our RAP!!! lol

an interview with a 3 year old..rivating!!

The amazing interview, you won't want to miss!

http://www.youtube.com/watch?v=KZf8MF2G3Z8&feature=youtu.be



and here is a super cute video of kline at age 1...working on counting to 2!


http://www.youtube.com/watch?v=PboUAjSK8nQ&list=UUmBr7zikXu2oROe6UoYMgDg&index=31