Kline resembled something of a make a wish kid! ;0)
We were so excited last Thursday to get to go to LA to see Dr. Rapaport
and get a little family time too.....well, when I woke up at 6 am after
sleeping 2hours, I felt like crap. Food poisoning , are you kidding
me???? My dear husband told me to "buck up!" Thanks hon! I was so
sick, I have never had such disgusting nasty rotten egg burps, I was
rotten from the inside out. Luckily, the Hersey squirts and throwing up
held off until we were In LA waiting to get our rental car! Then oh
man, it hit me like a ton of bricks! I actually spent many hours
sleeping on the bathroom floor because I couldn't make it to the bed.
>
>
Mean while, my husband was dealing with Kline and his itchy fits! I
didn't even realize that Kline was getting sick, coughing and wheezing,
and having a very hard time breathing, yikes! Could this too be a
symptom of withdrawal, he has never had asthma!?!?
>
> The
next morning we got to meet the wizard! Enter stage right, DR. Marvin
Rapaport! Dermatologist genius!! It was so nice to see him face to
face and get a confirmation that yes, Kline was suffering from topical
steroid withdrawal! We had the answer we had searched so so so long and
hard for! Best money we have ever spent!
>
> I was still
very sick at this time and Kline seemed to be getting worse by the
minute. That night he could hardly breath....I was ready to run into
the LA ER but my husband talked me out of it, something about gun wounds
and stabbings!
>
> So, then next morning we searched for
an urgent care that was open and took out crappy insurance! Finally
after 3hours of driving around, Kline screaming and itching the whole
time, we found one.
> The dr. Was a total dick about me
not wanting to give Kline any steroids to help his breathing. (I do not
understand why doctor's are soooo pro roids???) i am allergic to a
antibiotic that i can never soell right so i won't even try. I haven't
had it since i was a baby and broke out it an bleeding rash much like
kline's skin on steroids!!!! Not one dr. Has ever even suggested i use
it, but its ok to give steroids to my son that are killing him? WTF? He
finally gave him a breathing treatment, non steroidal! It helped! Thank
god! I apologized for being a bithc but i really wasn't very sorry! ;-)
>
> Then we took Kline to a movie, bad idea....itchy loud screaming fits in a $40 dollar movie, not worth it!
>
Then we tried taking Kline to the beach, which after I had my panic
attach of the sand hurting his skin, he actually had a blast and
exfoliated!! ;-)
>
> At this point I am still running from bathroom to bathroom! Never again will I eat questionable food!
>
>
The next day was Sunday and we were shooting for Disney. Not the best
place to take a kid that pulls down his pants every fifteen minutes and
screams at you to itch his "peenee"!!! So, between the itching fits and
the couching/wheezing fits, the poor kid did not have the best time! He
loved being on the rides, hated waiting in the lines. And he loved the
parade! Other than that we held Him all day and he looked like death!
He also loved meeting tigger! And me well, you guessed it, still
crapping my brains out! Sorry tmi!!??
>
> Then we saw
Rapaport on Monday and flew home, no kid should travel while on steroid
withdrawal. It is just terrible...everyone stares at his itching fits
and we were all way to stressed out!
>
>
> The
pluses of the trip...we had great comfy accommodations with awesome soft
bedding!! ;-) and we got to meet Dr. Marvin rapaport and get klines
diagnosed!
>
> now we wait and wait and itch and scream...and pray that it ends sooner than later!
>
> Xoxoxoxoox
>
> Ps. My stomach is still not right!
> Written from the toilet, Loren
> ;-)
>
Just curious, have you bathed him with adding 1 C Apple Cider Vinegar in the bath water regularly? That really helped my little boy with eczema. I hope GAPS works for him!
ReplyDeleteinteresting -- right about the time that our little guy's eczema was finally letting up (after years of fighting it w/ castor oil packs, liver flushes, anti-candida diet, etc. etc.), his asthma journey began. hmph. and that's the journey we've been on since then. in fact, interesting that i came here tonight b/c tonight was the most ramped up his asthma has been in a while. (we are fully equipped w/ a nebulizer at home so that we can give him the non-steroid treatments like they gave kline. HUGE help to his little lungs.) so hang in there, mama -- one itchy moment at a time. i am truly hoping that this, too, will pass.
ReplyDeleteblessings,
tanya
I hope your little one can breath easy!!!! With out steroids!!! Xoxoxoxo Loren!
ReplyDelete