Here we are in week 27....6 months and 1 week off steroids. Kline is still terrible. Last night he itched and oozed all night, didn't sleep at all. Even with his low thc medical marijuana olive oil drops we give at night, that were working great for sleep, they have now stopped helping! He is still in the tub the majority of the day. I was so hoping to be much better by now, but he is not! His neck is oozing so much and scabbing like it was in may!
And here comes September! Yuck! Our help, my sainted mother, has to go back to full time work. She watches my brothers 3 kids 50 hours a week...so our source of help is gone. That means I will have to work till 2:30 am every night but Friday. No one will be here to help with laundry, dishes, vacuuming, cooking...and my mental support. I will not get any naps no matter how little sleep we get at night. My mom also did all of our shopping in Reno since we can not even drive that far in the car yet! So no more trader joe's or whole foods, a staple in Kline's food allergy life!
I am so scared of what September will be like....I am losing my shit so badly WITH my mom's help, what will I do WITHOUT her? I really don't know!?!?!?!?
All I can do is hope that Kline will improve and fast! Lack of Sleep is the worst thing, so even if we just got that to improve that would be a help. A terrible challenge is in store for Denny and I......can we step up and handle it after being beaten down by the itchy bastard for over 6 months???? Only time will tell!!!
Please send some fast healing thoughts for Kline our way, we need them!!
And send that itchy bastard back to the dungeons, where he belongs, never to be seen again! Sorry I've been watching "game of thrones"!! Love it!!!!
Here we go! Maybe I should double up on my Paxil and get an IV drip of chocolate and wine!!! Then maybe, just maybe, I can do it!?!? Or we could win the lotto, quit work and get a cleaning lady, I'd be fine with that too! ;-)
Xoxox Loren
Hi Loren,
ReplyDeleteI am so sorry you guys are still going through hell and that your support system is going away. You are doing an AWESOME job with Kline and figuring him out. I am in FL dealing with our own kids and their stuff but I keep up with you through my reader. I wanted to ask if you have ever looked into parasites being behind Kline's red skin syndrome? The reason I ask is because we recently found out that my entire family is affected (aparently 95% of Americans have some form of parasite and don't know it) and it was the cause behind my 4yo compulsively pulling out her hair. She is pretty much bald and pulled her hair out CONSTANTLY and the day after we dosed her for parasites, she stopped, like someone turned off a switch. Some of the ailments that can be caused by parasites are: SKIN DISORDERS & ALLERGIES – Parasites that penetrate the skin cause itching. When tissue becomes inflamed from these parasites, the body’s white blood cells increase to defend the body. This reaction causes skin rashes and food allergies to appear. Parasites also create toxins and the skin, being the largest organ, tries to remove these toxins which causes many skin problems are listed below. Symptoms include:
Dry Skin
Dry Hair
Brittle Hair
Hair Loss
Allergies
Itchy Nose
Itchy Anus
Itchy Skin
Hives
Allergic Reactions to Food
Crawling Sensation Under the Skin
Rashes
Weeping Eczema
Cutaneous Ulcers
Papular Lesions
Swelling
Sores
(Those came from this site: https://humaworm.com/symptoms.html).
Anyway, it is worth looking into. We have been through years of hell and I have been unwell (digestive/fatigue, etc) for most of my life and I'm now wondering if it wasn't parasites all along. We are just starting to figure it out and have a long road ahead but I wanted to share this with you in case it could be of some help. Good luck!
Casey
Thanks casey! I hope your littles and yourself are better soon! He did get his stool checked for parasites but there were none. Is that the on,y test there is? Xoxoxo Loren
DeleteCasey...another little girl with red skin has tested for parasites.....how does she get rid of them??? U can email me if u would like... Lorenbmccormac@yahoo.com thank u!
DeleteLoren, Sorry to hear that Kline is having some relapses. He sure deserves a happier life, free from the IB. Wish GMa and I could come out to help a while; but I start therapy tomorrow for 44 days. But, we are still buying lottery tickets, maybe we will hit big enough to ease the pain you, Denny and Kline are going through. We were all hoping that month 7 would be better, praying it still will be. Love you!
ReplyDeleteLove 'em everyday! Dad
Kline has spent too much time crying, it breaks our hearts to watch you go through all this pain.
ReplyDeleteLove you!
Dad
Thanks dad!! Good luck this week.....we love u and wish u lived closer! Xxoo
DeleteI have no idea if this will help, but a friend of mine blogs at Raising A Sensitive Child. Her son has very deeply rooted health problems and she documents all the treatments they do for him. It's quite the journey. So many types of treatments I had never even heard of before. I bet she could give you some guidance if you explain your son's health condition to her. Hang in there.
ReplyDeleteOops forgot the link http://crystalchild.wordpress.com/
ReplyDeleteHey Loren! Wish I could fly over from the UK and help you guys out. Por Kline looks so itchy.
ReplyDeleteI'm on month 9 and have just posted some progress pics. I hope they encourage you that he will get better.
http://topicalsteroidwithdrawal.blogspot.co.uk/2012/09/day-302-progress-photos.html
Hoping the next few months chase away the itchy monster for good. Luv U Kline. x