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| sponsored by Crayola! lol |
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| nice boogers! |
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| Skiing with daddy and mommy |
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| ski break |
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| the itchy bastard joined us for skiing too....he does not get the hint! |
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| Red skin warrior Besties!!!! |
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| love you gals!!! |
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| Kline thinks he's a baby! |
13 months off topical steroids , which Kline was over prescribed for almost 3 years for eczema.
I thought once we hit a year off the steroids life would be different, better! Well, month 13 has been the shit...and not like the shit like the bomb, like awesome. No, the shit as in THE SHITS, like I have the shits and my ass is burning so bad from them and my hemorrhoids are hanging out so pass me that fucking doughnut pillow so I can sit down, shits!! His neck has been oozing the worst I think my husband and I have ever seen it. The poor baby is so brave .......I ask him if it hurts and he says ...
"Yes mommy, but don"t worry it will get better soon!" What a fucking warrior...I mean if my neck look and felt like his it is all I would be talking about. But, he just accepts it and moves on! I love you my brave boy! You make me a better person everyday...except those days where you are an extreme brat and I want to scream my head off and run away! ;0)
Now, his face started to ooze, which has never happened before.......I am hoping that it is moving out of the neck, then out of the face and then out of him for good!
We had a busy March so far, hence me not posting.
Grandma and grandpa came to visit...yeah!!!!! They were a huge help and we will miss them so much. I can not believe I did not take one picture of them. Sorry!!!!
Kline has been taking weekly ski lessons and is finally turning and stopping all on his own!!! yeah, my little ripper!!! So, exciting and so nice to see him doing more kids things!!!!
I got to have a girls night in San Fransisco with 2 other red skin warrior mothers!! It was so nice to go and talk nothing but red skin with 2 mom's who know it all too well!!!! We will for ever be bonded because of our babies suffering!! I love you J and K!!!!!! You know who you are!!!!
So, lets hope Mid march and April bring more healing to healed!
From our ski slopes to your , Loren
"Yes mommy, but don"t worry it will get better soon!" What a fucking warrior...
ReplyDelete^^ THIS ^^
Much love you to you and thank you for being an inspiration.
Jo / Miss Kitty
xxx
We too enjoyed our time with Loren, Denny and our little warrior, Kline. Got to see him ski, good thing GPa didn't have his skis, Pretty sure K would have beat me badly. But then he is closer to the ground and a tad more flexible. Kline had some rough nights while we were there and it reminds us so much how Loren and Denny deal with Kline's situation. Not many people can feel the pain unless you have seen the suffering of our little guy. Truly hard to watch as a Grandparent. We will pray harder and more often for the IB to disappear and for Kline to be healed at last. I might have some pictures of our visit, so if I do and if I can figure how to post I will. Until you are all healed, Love 'em everyday! GMa and GPa
ReplyDeleteI am 24 girl who come from Hong Kong. I have severe eczema since I was young and used topical steroid for ages. After read the ITSAN wesite, i started to quite steroid cream. It is 14 days now, my eczema got worse and spread to some new places (that places are very healthy and never used steroid before) Sometimes I feel so depressed and cant sleep well, but I keep telling myself that I must not give up! Glad to see your improvement, hang in there :)
ReplyDeleteHang in there....yes eventually ts effects every part of the body, even where steroids were never used. I hope you have an easy journey through tsa!! Xoxox Loren
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