Stop topical steroid abuse!

Friday, December 28, 2012

Is there an ejection seat...because I am fucking sick of this ride!



Kline 44 weeks off topical steroid addiction withdrawal!

 Kline sledding in our back yard!

video
Kline has had a terrible few weeks, he had a good day yesterday followed by the itchy bastard coming back full force all night long and back again today.  The breaks almost fuck me up more than not getting them..I see the light at the end of the tunnel, just to be hit by a Mac truck before we reach it. 

Christmas was pretty much a bust...he had a few little breaks to open present and sled, but other than that all the adults were crying on Christmas, and they were not tears of joy! Apparently, Santa couldn't give us what we asked for!!!!

I know one day he WILL be better, but WTF?  I thought at 10 months his life would be a little more "normal".  What ever that is!?!?

So, 2012.... I am done with you, don't let the door hit you in your ass on the way out!

Here's to a happy, healthy, itch free, skin issue free, 2013!  2013, please don't let us down!!!!!!!
xoxo
Grumpy Loren

Friday, December 21, 2012

Honey, please try not to Piss mommy off!

                                                            GRAMMY AND KLINE
                                              MOM AND DAD'S 80'S PART GET UP


Kline is  43 weeks off topical steroids and it has been a hell of a week.

He has been flaring again, I think because he had a bit of a cold, cough with the damn wheeze.
He's been back in the bath nearly all day, all week long.....except for a great night we had when we went to a local ski resort and saw Santa!!!

I think I am having some kind of post traumatic stress disorder.  Unfortunately, we haven't even gotten to the post part yet! I can not tolerate loud noises at all...the dog barks, I want to scream.  Kline yells "ice pack" I want to jump out of my skin. I hope by the time Kline is better I am not  so far gone down the rabbit hole of depression and anxiety that I can't climb out of it. 

I am having anger issues too....very short temper with pretty much everyone that is close to me, aka hubby, Kline and my parents.  So, I am looking into a therapist to help me work though this crap....watching your baby being tortured all day and night for a year, can wear you the crap down!!! And I think I have hit my bottom.....the antidepressants are not working as well because I changed to a different one and have not yet adjusted.....so of to therapy I go. 

I am amazed at how well my baby copes with this stuff.......way better than I am or my hubby!  He is still in a good mood most of the time unless he is uncontrollably itchy and in pain...and he is still just as ornery as ever.  So, as long as I don't mess him up too much, I think he will come out of this ok mentally! ;-)

My hope is that we will be so much stronger from this hell.....we will be a more tight knit family...and we will be happy and itch free, able to Concur anything life throws at us.  I hope that Kline will be an even more kind person and accepting of others with issues of their own. 

If you have been reading my blog you know I am not  religious but I hope that everyday I can be more like Jesus and less like Satan! Lol

Signing off and have a very happy itch-free holiday!  As Kline said the other day

"Merry ITCHY Christmas!"

He also told me, "Santa wasn't gong to bring me any presents because I am mean to him!" NICE!

Xoxoxo Mama Satan! ;-)

Friday, December 14, 2012

42 weeks off topcail steroids and pictures with santa!!










Kline is 42 weeks off topical steroids today...and although his still gets the insane itch fits, he is getting more and more breaks!  Thank goodness for the breaks.  this has been the hardest thing we have ever done but the breaks let me know we are for sure on the right path. His skin is starting too look better and better! Thanks all for the support through this hard hard time


Our thoughts go out to the families in Connecticut that lost their babies in the terrible school shooting! What is going on in this world!Those families will never be the same again.  unimaginable~    xoxoxoxox loren

Monday, December 3, 2012

vlogg for today topic ...skin

http://www.youtube.com/watch?v=Fp7IoYr-LY0&feature=youtu.be


and here is kline yesterday he kept jumping out of the hot tub and running around naked in the snow....he is a tahoe baby!!!!!










xoxox crazy
Loren xoxo

Sunday, December 2, 2012

my responce to my vlogg reponces!


So, the drama on Kline's blog has been high! Here is my second vlogg ...

My rebuttal vlogg to the people I offened with my 1st vlogg!


for give the messy room!!! Looks like I end to do the laundry.

Friday, November 30, 2012

The crazy ass shit your kids can say!

Kline is 40 weeks off steroids.....I tried to start vlogging so here is my 1st one. I hope it works. Please let me know if you like this or writing better.  Beware this video contains adult language and no that is not a booger hanging out of  my nose, I have a cut on it, and no not from picking my nose too much! lol

http://www.youtube.com/watch?v=EX1HXTYWcN4&feature=youtu.be


Here are pix of kline this week while in tub flaring...you can see his neck and arms and feet still give him the most problem.






Tuesday, November 27, 2012

we are all losing our shit!



















9 months 39.5 weeks off topical steroids and we are losing it!  we are all so over this crap...no life , constant screaming...luckily my husband and i lose our shit at different times but know that we both lose it!  not sure when we will have our life back, but we are very regretful for using steroids for so long and so much for klines  eczema.....  crap ola!
xox loren

Wednesday, November 14, 2012

Is the tub a crutch??

Here we are at 37.5 weeks off topical steroids which Kline was on for 2.5 years for eczema...and yes the .5 is very important! ;-)

These days Kline wants in the tub before his flares even get bad. I think he is using the bath as a crutch.....I know it helps the pain and itch of the flares but I think he could be out of the tub more than he is if he would fight through the flares.  But he is a kid and I can not convince him to push through the pain.  I imagine one day he will not be a merman, but for now we are looking for Ariel to keep him company.

His skin is looking great. He has a bunch of small red bumps on his torso that are coming to a head....look like pimples??? They don't bother him at all so I am trying to ignore them! He is sleeping better...but I don't want to jinx it so, shhhhh!

We are using "medicine mama's sweet bee magic" on his skin right after bath with his eczema pj's over it.  He likes that ointment the best! You can get it on amazon.

We stopped using the medical marijuana Olive oil at night and Tylenol with codeine, since he seemed to become immune to them and they were no longer helping the itch or sleep.


We Are almost done with month 9 and I can not wait for the crap year of 2012 to be over!!!!

Have a great itch free, rash free week!
Xoxox loren

Saturday, November 3, 2012

Happy Halloween!

Kline got to go trick or treating and was out of the tub 4 hours!!  His skin is looking so good!!!  He is getting a few more breaks from the itchy bastard, but the itchy bastard is still with us most of the time.  It is so crazy to see him with such great skin, better than it has been in a year, and still see him so insanely itchy.  We have some good nights and a lot of bad itchy sleepless night still.......I hope that my posts just get better and better!!!  Happy Halloween and welcome November!







xoxox Loren

Sunday, October 28, 2012

8 months off topical steroids...

And we still have a way to go...but there has been healing!! I swear!!


Here is Kline's skin while STILL using topical steroid in Feb. 2012



And here he is Last week 8 months off steroids! Oct. 2012
He has his problem spots still for sure....his feet are super messed up still from the infection and the spots we used the most steroids have a way to go.  But there has been a ton of healing!!! He is still itchy a lot and in the bathtub a lot!! But he is getting more and more breaks!! I hope he will be 100% soon!!!!! PLEASE!!!!! I have stopped praying every night as it doesn't seem to help a bit! ;-\  Just don't think god works that way anymore...if he/she did there wouldn't be people/children dieing from cancer and on 9/11 the towers never would have fallen as I am sure all of those people were praying to make it home safely.  So, I have put my energy into lovin' on Kline and drinking more wine! ;-)

xxoxoxo

Loren





Tuesday, October 16, 2012

week 33.5 pictures! our little monkey!











his feet are free from infection but have a very long way to go to heal! bummer! i hope he will be able to trick or treat this year!!!!!?????  We r almost 8 months off steroids! ugh!