Stop topical steroid abuse!

Thursday, February 26, 2015

Kline's 3 year anniversary off topical steroids!

Today marks Kline's 3 year anniversary of being off topical steroids. 3.5 years of pure hell.  All consumed by itch, worry, and pain.  Watching your child suffer for so long and so intensely is the worst thing I have ever experienced.

We have lost so much of our lives from his steroid addiction withdrawal .....  Not only the pain he has been in,  but also, financially we have spent probably $20,000 in the last 3 years trying to speed this thing up. Which nothing has helped.

We have nearly separated from the stress this has put on our marriage, luckily we have fought through the urge to leave and have stuck it out because we do need each other.

We haven't had but maybe 5 good nights for sleep in 3 years and kline still needs the tub nearly every night.

But he is better than 3 yrs ago.....most of his skin is beautiful!!!! His itch is not constant, and he no longer stays all day and night in the tub. He can go to school most days and ski school.  His sleep still sucks but even that is better than it used to be. He used to go 36 hours with out sleeping and now he only wakes a few times to have a short itch fest.

I hope with every inch of my body that next year at 4 yrs off I will be able to say that kline is living fully again.  Even if he has eczema I hope that his itch does not fully consumer us as  it has the last 3 years.

I have amazing support with our parents and my friends and www support is immeasurable!
 I am so thankful to all of them for helping us "manage" the last 3 years.

I have an amazing husband that stayed even when I was at my worst.

And I have one of the bravest boys on the planet, that even when his feet as cut up like ground beef he'll still painfully put his ski boots on, ski, and sing the whole time he's going down the mountain.  Kline amazes me...I don't think I would have ever been as brave as he has been.

I hope that klines story , blog and my work with ITSAN will prevent others from suffering like our family has and most importantly that no child will suffer again like my son has. Xoxoxoxxo Loren

Monday, November 24, 2014

Pictures of a life with eczema which leads to skin infection! Unfortunatly!

A life with Chronic Eczema, skin issues, and now topical steroid damage leads to a life filled with the possibility of skin infections! Enter stage left, for no good reason at all, impetigo! 

At the Dr. office..Kline's first bout of impetigo! Luckily he has been through so much with life long eczema, rashes and red skin syndrome...impetigo was nothing!

3 days after antibiotics and he is all better!!!

The only other time he has had a skin infection in the 33 months he has been suffering from topical steroid damage, aka topical steroid withdrawal, was 2 years ago when his feet had a terrible horrible no good very bad skin infection.  Check out how bad they were and how we knew he was infected here  "when you-think-worst-cant-get-any-worse"

So compared to his foot infection and his suffering from red skin syndrome, the impetigo event was nothing! Thankfully it clear quickly and didn't spread! The hardest part was getting him to take the nasty antibiotics..."Mom's tip" coco hides the taste of nasty medicine!

Parents trust your will know when there is a skin infection or it's just true eczema. It is totally a different beast! Just like topical steroid withdrawal is completely different than eczema. 

xoxoxo Loren and Kline!

Thursday, November 20, 2014

ITSAN has tshirts now! Order yours today!!!

ITSAN's new t shirt's are ready to order!!! Available in Blue and Dark Grey!
Get yours today..they come in youth and adult sizes and the shirt drive will only run till don't delay get yours today!!!! Sorry US ONLY

ITSAN Shirt Fundraiser ( blue or dark grey shirts)  Fundraiser - unisex shirt design - frontITSAN Shirt Fundraiser ( blue or dark grey shirts)  Fundraiser - unisex shirt design - front

Friday, October 17, 2014

Team Red Skin Warriors Needs Your HELP to get on the Amazing race!!!

PLEASE tweet to @AmazingRace_CBS and tell the amazing race that you want them to put Team Red Skin Warriors on The Amazing Race!!! Please share and Like too.  Help Tell Kline's Red Skin Syndrome Story! The amazing race is shown in over 100 Counties with Millions of Views, lets get Red skin syndrome on the map!!!!

Click here to watch Team Red Skin Warriors hilarious and touching Audition video!!

Thanks for all the support and helping to tell Kline's story and saving someone elses skin!!!

xoxoxo Loren

Thursday, October 16, 2014

WATCH THE NEW PSA VIDEO FROM WWW.ITSAN.ORG plus Kline's pregress pictures!

Click here to watch Itsan's new PSA announcment!! ps. you might recognise someone! :)

I have been working on making an audition video for the CBS show The Amazing Race to share Kline's red skin story. These are the progress pictures I did for the video and thought they may give hope to all of you who are either suffering now or may think you should get off topical steroids. I hope they help and when The Amazing race video is all done and ready to submit I will share it with you all on YouTube and here! Its pretty funny!

  Kline before he was addicted to the topical steroids!

 Kline during Red Skin Syndrome and Nearly healed


xoxoxo Loren and Warrior Boy Kline

Thursday, October 2, 2014

The Dragon Lady!

A Dramatization of the Dragon Lady!

I would like to introduce you to a side of myself, I do not like but is a real aspect of topical steroid addiction as a parent. The dragon lady!  She can be seen in the middle of the night and mostly comes out when she has had an hour or less of sleep just to be woken by the itchy bastard.  

She is mean, unreasonable, and often uses profanity.  She is the Mr. Hyde to my Dr. Jeckel.  She is the part of me that I hate the most and the part of me I am the least truly  like. 

So last night the dragon lady showed up!

It was 5 in the morning and I had been a sleep for a little over an hour, since I work nights :( .  

The itchy bastard came on strong....making Kline scream, itch and also be unreasonable, all totally expected when dealing with such an ass as the itchy bastard. 

And then my son turns to me and says,

" Mommy, you're beautiful!"

And I think ...
'dear lord, honey, if you think there is anything beautiful about the way I look or am acting......we are going to need years of therapy!'

In the beginning of tsa, the dragon lady was around a lot!!!!  I am happy to say that now 31 months off topical steroids, the dragon lady shows up very rarely...and I look forward to the day she is gone for good!  The day my beautiful son can see me for the real beautiful woman I am! 

I love you my beautiful and forgiving baby boy! Xoxoxo love, mommy aka the dragon lady! :/

                                     Kline's over the last 2 years of withdrawal......

                                    Healing Happens SLOWLY, BUT SURLY!!!