Monday, September 24, 2012
The lost summer...30 weeks off topcail steroids
" This has been the lost summer!"
And he is completely right!
Although it really has been the lost winter, spring, summer,and now fall!
But, I guess because there is so much fun to be had in summer, summer was the biggest blow.
We watched our friends, take trip, camp, hike, bike, go to the pool, beach and lake. Go on vacations, have picnics, play at the park. Have parties, wedding, reunions, baby showers and births. All the while, we have been itching Kline, rubbing Kline, sitting in the tubs all hours of the day, and not sleeping at night. Watching our baby in the most terrible pain, itch and burn ever and not being able to do anything to help him. We haven't really left the house since April and when we do it is so nerve racking waiting for the itchy bastard to attack it is almost not worth it.
My husband and I go to work and come home to switch off care for Kline. I grocery shop after work which is normally between 11:30pm and 2:30am. Thank god for amazon! We are tag team parents, 2 ships passing in the wind.
I hope that this fall will be our last lost season that the steroids will take! I hope to never lose another season of our lives again!
Kline is 30 weeks now, almost 7 months off topical steroids! And we have a lot more healing to go through! He skin looks amazing in the morning and then the capillaries freak out and knock him right back into the tub.
I would say his skin is 80% healed...but the flares still hit him hard. The hot springs and dead sea salt in his baths seem to be helping the look and healing of his skin. He loves the way the hot springs feel, wish we lived closer to them!
May none of you lose a summer like we have by the itchy bastard! Be careful with your steroid use, please! Learn from our mistake!