The crazy ass shit your kids can say!

Kline is 40 weeks off steroids.....I tried to start vlogging so here is my 1st one. I hope it works. Please let me know if you like this or writing better.  Beware this video contains adult language and no that is not a booger hanging out of  my nose, I have a cut on it, and no not from picking my nose too much! lol

http://www.youtube.com/watch?v=EX1HXTYWcN4&feature=youtu.be


Here are pix of kline this week while in tub flaring...you can see his neck and arms and feet still give him the most problem.

we are all losing our shit!

9 months 39.5 weeks off topical steroids and we are losing it!  we are all so over this crap...no life , constant screaming...luckily my husband and i lose our shit at different times but know that we both lose it!  not sure when we will have our life back, but we are very regretful for using steroids for so long and so much for klines  eczema.....  crap ola!
xox loren

Is the tub a crutch??

Here we are at 37.5 weeks off topical steroids which Kline was on for 2.5 years for eczema...and yes the .5 is very important! ;-)

These days Kline wants in the tub before his flares even get bad. I think he is using the bath as a crutch.....I know it helps the pain and itch of the flares but I think he could be out of the tub more than he is if he would fight through the flares.  But he is a kid and I can not convince him to push through the pain.  I imagine one day he will not be a merman, but for now we are looking for Ariel to keep him company.

His skin is looking great. He has a bunch of small red bumps on his torso that are coming to a head....look like pimples??? They don't bother him at all so I am trying to ignore them! He is sleeping better...but I don't want to jinx it so, shhhhh!

We are using "medicine mama's sweet bee magic" on his skin right after bath with his eczema pj's over it.  He likes that ointment the best! You can get it on amazon.

We stopped using the medical marijuana Olive oil at night and Tylenol with codeine, since he seemed to become immune to them and they were no longer helping the itch or sleep.


We Are almost done with month 9 and I can not wait for the crap year of 2012 to be over!!!!

Have a great itch free, rash free week!
Xoxox loren

Happy Halloween!

Kline got to go trick or treating and was out of the tub 4 hours!!  His skin is looking so good!!!  He is getting a few more breaks from the itchy bastard, but the itchy bastard is still with us most of the time.  It is so crazy to see him with such great skin, better than it has been in a year, and still see him so insanely itchy.  We have some good nights and a lot of bad itchy sleepless night still.......I hope that my posts just get better and better!!!  Happy Halloween and welcome November!

xoxox Loren

8 months off topical steroids...

And we still have a way to go...but there has been healing!! I swear!!


Here is Kline's skin while STILL using topical steroid in Feb. 2012

And here he is Last week 8 months off steroids! Oct. 2012

He has his problem spots still for sure....his feet are super messed up still from the infection and the spots we used the most steroids have a way to go.  But there has been a ton of healing!!! He is still itchy a lot and in the bathtub a lot!! But he is getting more and more breaks!! I hope he will be 100% soon!!!!! PLEASE!!!!! I have stopped praying every night as it doesn't seem to help a bit! ;-\  Just don't think god works that way anymore...if he/she did there wouldn't be people/children dieing from cancer and on 9/11 the towers never would have fallen as I am sure all of those people were praying to make it home safely.  So, I have put my energy into lovin' on Kline and drinking more wine! ;-)

xxoxoxo

Loren

week 33.5 pictures! our little monkey!

his feet are free from infection but have a very long way to go to heal! bummer! i hope he will be able to trick or treat this year!!!!!?????  We r almost 8 months off steroids! ugh!

When you think the worst can't get any worse, it gets worser!

 his feet on saturday

 then over night all hell broke loose and sunday he was oozing yellow, and could hardly walk!

 monday he was still oozing and then they started to bleed...has not walked since sunday.

Well, he we r celebrating being done with our 7th month off topical steroids, to be hit by a mack truck full of a bacterial and yeast infection all over his feet and ankle.  The poor baby can't walk and is in so much pain, I'd say a 10, and this kid can take a lot of pain.  It is so sad to not only see him flare but on top of that see him suffering so much for the infections.  So frustrating and sad.....we are at our wits end!  How much more can we take?

The infection is so different from the red skin.....his feet are oozing yellow and blood and smell like rotten skin.  The holes in his feet are huge and the doctor said it felt like a very bad burn.  I hope he heals quickly on the meds and thankfully the codeine is helping him sleep a little.

I'll keep you posted on my brave little man. 

Also, if you could click on the mommy's blog voting ( top left of blog) that would be awesome...my blog got accepted on their site but I need people to click on the link to keep it active. I am hoping this will be another way to bring more awareness to topical steroid addiction. Thank you so much and keep Kline in your thoughts! Xoxoxooxo


One fed up mama!
Loren