The Dragon Lady!

                                                    

A Dramatization of the Dragon Lady!

I would like to introduce you to a side of myself, I do not like but is a real aspect of topical steroid addiction as a parent. The dragon lady!  She can be seen in the middle of the night and mostly comes out when she has had an hour or less of sleep just to be woken by the itchy bastard.  

She is mean, unreasonable, and often uses profanity.  She is the Mr. Hyde to my Dr. Jeckel.  She is the part of me that I hate the most and the part of me I am the least truly  like. 

So last night the dragon lady showed up!

It was 5 in the morning and I had been a sleep for a little over an hour, since I work nights :( .  

The itchy bastard came on strong....making Kline scream, itch and also be unreasonable, all totally expected when dealing with such an ass as the itchy bastard. 

And then my son turns to me and says,

" Mommy, you're beautiful!"

And I think ...

'dear lord, honey, if you think there is anything beautiful about the way I look or am acting......we are going to need years of therapy!'

In the beginning of tsa, the dragon lady was around a lot!!!!  I am happy to say that now 31 months off topical steroids, the dragon lady shows up very rarely...and I look forward to the day she is gone for good!  The day my beautiful son can see me for the real beautiful woman I am! 

I love you my beautiful and forgiving baby boy! Xoxoxo love, mommy aka the dragon lady! :/

                                     Kline's over the last 2 years of withdrawal......

Kline's Feet today!!!!!!!!!

                                    Healing Happens SLOWLY, BUT SURLY!!!

My hopes for my brave brave boy!

Kline having a blast at the Crossfit Jibboom bbq!!!

Kline I hope that soon you won't be itchy anymore.
That you won't be itchy.
I hope that you will have a life free from pain.
I hope that your will have a "normal" childhood.
I hope that you will have friends that won't know you as the child that is itching crazy on the floor.
I hope that your education won't be in jeopardy.
I hope that you will fit in and be Kline, not itchy Kline!
I can't wait till your itchy bastard is completely gone so we can start living our lives again.
We can travel, camp, party, celebrate and LIVE!
I can't wait to watch you grow once you are only in the tub to wash not for comfort.
I can't wait to see you make new friends and see how fun life can be.
I can't wait to see you play soccer or any activity and not worry that you may get too hot and itch like a crazy man.

I can't wait to not hear you scream at night as you sleep because the itchy bastard is attacking you.

Life really is good Kline, and I know our's has been less than shitty, but one day the itchy bastard will be a nightmare of our past and you can see how wonderful life can really be!

I wish for you so much! Love, laughter, health, joy, strength, and a life! A really life where a medicine doesn't ruin everything for you!

Mommy and daddy can never take away the pain the topical steroids have caused you.  The drug that we were instructed to  lathered on you daily , but I hope that your journey through topical steroid addiction will make your life that much more wonderful when you are healed! There are reason you suffered, mommy will not stop until all the other babies out there do not suffer like you. And most importantly out of pain comes joy.  Our life will be as joyous as it can once you are healed, because nothing will phase us now, we can make it through anything!!!

I love you Kline, and your bravery amazes me!  I know you have no choice, but you handle the itchy bastard way better than I do or ever would! I love you baba!! My brave brave boy!
Xoxoxo Honey 

And our life begins again!!!

Sorry I have been MIA for 3 months....Kline had a rough time after his bday with a bad flare. But he is sooooo much better. We actually went on our first trip in 2.5 years!!! AMAZING!  He is now going to preschool and kinder-

camp at least 2 hours day!  (the heat does seem to make him itch more during the day)  His sleep is soooooooooooooooooooooooooooooo much better, he is a sleep most nights by 10pm and rarely wakes up to have an itching fit, AMEN!  His skin is looking amazing! Even his feet. We are still wrapping his feet and wrists at night for protection and using the Lemongrass balm I mentioned in an earlier post. He is not 100% yet but I am hoping that I will be able to post that very soon!!!
Here we are at Santa Cruz on our first vacation in 2.5 years!!! Yahooooooooooooooooooooooooooooo!!

 KLINE'S SKIN 28.5 MONTHS OFF TOPICAL STEROIDS

Kline's 5th birthday!!!

HAPPY BIRTHDAY WARRIOR BOY!! WE LOVE YOU!!!

If you would like to donate to www.itsan.org in honor of kline's birthday click here! thank you xoox DONATE HERE

Kline turns five itsan.org fundraiser

THANK YOU FOR DONATION TO ITSAN.ORG XOXO KLINE

DONATE HERE!! WWW.ITSAN.ORG


Kline turns 5 on April 21st! So I am asking all of my Friend's and family to donate in Kline's name to www.itsan.org and make a donation of some kind and try to have a 5 in your donation! So $25, $35,$45,$50, or go for the double $55!!!! Let's help spread the word of the damage topical steroids can do ( if not properly prescribed) and help itsan help others going through withdrawal and spread the word so no one ever has to suffer like Warrior Kline. If I have ever helped support you through tsa or klines blog has helped you, or you have bennefited from itsan in anyway, Please help today!! Thank you, xoxox Kline, the big 5 year old!!

Kline's favorite thing for his skin.....

 As we all know, Kline hates stuff put on him!! He has been in a really bad flare for about 2 months and we started to use this great new lemongrass essential oil balm. Aonther red skin mommy makes it for her son Isaiah, who has had a terrible withdrawal process but is healing so nicely with his mama's balms!! This is such a amazing family and this little boy has never know healthy comfortable skin!  Here is Isaiah's story and progress....

                            BRAVE Isaiah's Story


So, Kline's wrists have been very bad. He was rubbing them all night on his pj's and bleeding all over them. Isaiah mom suggested I wrap them with her balm under the dry gauze and it has really helped. Unfortunately Kline will not let me wrap all of him...especially his feet, he is worried they will ooze and then stick to the gauze. Every 4 years old worry, right? NO!!




                          To check out the lemongrass balm that Kline loves click here!

                                           http://www.etsy.com/shop/TheHomeApothecary


Kline's wrist before and after balm pix with wrapping of lemongrass balm.

 wrist after wraps for about 4 days

today day 5

DAY 4

DAY 2

DAY 2 OF WRAPS

It's not an over night cure but Kline likes it which is huge..he hates everything we put on him normally. The balm is made with  all organic ingredients and made with the best essential oils...I love it for myself too. I was saving the balm for Kline and I tried his vanicream (KLINE COULD NOT TOLERATE THE VANICREAM, HE SCREAMED BLOODY MURDER..and begged me to put the lemongrass balm on him instead....the vanicream also made him have an all over body rash.) on me and it dried my skin right up, unlike this great balm.  It smells wonderful too.....Stephanie Sells sample sizes which is great because you can try them on the skin first before you invest the money and have yet another jar of lotion you can not use on your skin! I recommend this for anyone with skin! :)

Here are the rest of the pictures of Kline, he has been in a really bad flare...I wish he didn't fight the wraps so much because I do feel like wrapping the rest of him with the lemongrass would help so much! :(

Let me know if you try the balms and how they work for you!!

Happy healing!! xoxox Loren