Stop topical steroid abuse!

Tuesday, July 3, 2012

We are seriously so sick of this!!!

 i have to remember that there has been healing!!  above was kline 5/8 and below  6/11
and below here is 5/10 and then 6/17...u can see the improvement, now if the itchy bastard would just stay away!!!

Here we are in week 18 of pure hell of topical steroid much longer can we stand this?  Kline has been sick since nov...when we started to ween him off of the steroids.  And there is no end in sight.  This freaking sucks!  Kline is in full on flare if he isn't in the bath all the time.  Luckily, he is sleeping better and his skin look amazing when he isn't flaring.  This is the craziest shit I have ever seen!  And to think a medicine can do this to your body and take soooooo long to heal from, it is criminal!  No one should have to  suffer like this from something their trusted doctors gave them to get better!  When will this end?????

The biggest blessing out of this whole thing , is that thank god this is not terminal!!!!!

Discouraged and outraged!


  1. Oh honey, I know how devastating this is, every day can feel like a kick in the teeth, but looking at those photos wow, he is doing grand, and if he is sleeping better that I think is one of the best signs. Wish I could help you with that bloody itch, but that does seem one of the hardest things to bear.
    He is doing amazing and so are you! Keep on keeping on, Love to you all x

  2. Hi Sweety, Kline is getting better each day. His skin looks so much better than 6 weeks ago. We are praying that the IB will die quickly and go back to hell where it came from. We so wish we could be there to help. Love you! Keep believing that you are doing the right thing and that it will be over soon. Love 'em everyday! Dad

  3. Loren,

    One thing Kristina and I realized when we were at about the same stage, is that at one point we sat back and went - Hey! we're getting a good day every week! Which wasn't much, but when you recognize that you're getting teeny tiny improvements consistently it was encouraging for us. Hang in there.