Stop topical steroid abuse!

Tuesday, May 8, 2012

Things I never want to hear my 3 year old red skin syndrome son say again!!

 kline 10 weeks off steroids!
1. "Anyone save me?!"

As we were itching on the couch he screamed out, " Anyone, save me?" in a question, like can anyone save me! So, heart wrenching! I told Him he is being saved by Dr. Rapaport and we aren't using anymore of those bad medicines that make you sick anymore!!!

2.  While trying to put Kline down for a nap he said,

" I worried mommy!"

I said, what are you worried about baby?

Kline, "I worried about my skin!"

I told him that he was going to get better!

And he said, "when?, soon?"

Well, how do you tell your baby you don't know when but it will happen?  I told him, maybe by the end of the summer!??? Let's hope!!!!

Another heart breaking moment that my baby should not be going through, if our doctors had known what topical steroids could do to his little body.

3. "I too itchy to eat, mommy!"

WTF?  This crap is so debilitating that he can not even eat when he is having an itchy bug fit....how cruel!  Hey, pharmaceutical company's are you getting this?

Number 4-9 I hear pretty much everyday, multiple times a day!!!

4.  "Itch me mommy!"

5. "Save me mommy!"

6. "Itch my pee nee!" , " itch my boob!", "itch my arm pit!" , and the ever so cute, "itch my leg pit!", you name it he asks for it be be itched.

7. " I got the itchy bugs."

8.  "It burns, it burns!"

9. "I so sick , mommy."  Or "I too sick mommy!"

10.  While we were out shopping I really had to pee and Kline said, " go potty quick mommy, if You pee pee your pants it's going to burn!" why? Because, when he has an accident it burns like a mother!  That is probably why he potty trained himself before he was 2!!!! Even clothe diapers bother his bum so much.

11. while I was having one of my crying fits one day, Kline said,

" why you crying mommy?  Here drink some water, it will make you feel better!  "

12. And another day during another one of my crying fits, Kline said,

  "mommy, no you cry, Pick me up!" and then my 3year old wiped away my tears,  Wrong in so many ways!

13. Sometimes 2 hands just aren't enough!

While I was itching him one day he said,

"Itch me with Your  5 hands!" apparently when you have red skin you need 5 hands to itch you, 2 just won't cut it.




14.  "Itch my pee née" , " blow my pee née", and the latest, "pet my pee nee" a little boys penis should not itch and burn so much, because of  the cortisone I was given by his Dr. To put on his diaper rash, his red skin is so bad on his groin and anus.  ( oh, did I tell you , you are Not supposed to put steroids on you face or groin! and definitely not everyday.)

And the most heart breaking, rip my heart out, step on it and grind it in the disposal...........

1 " Hurt me, mommy!!!!!  I want you to hurt me, mommy!"

Dr. Rapaport said that the itching makes them so crazy that they actually like it when they cut themselves with their nails while itching, because at least the pain is a different feeling than the itch.  So that is why my little 3 year old baby want me to "hurt him"by itching him really hard, so he can feel something other than the constant debilitating itch that is red skin syndrome. (ps. even though he begged, I did not hurt him) poor baby!

I am sure there will be more, very sad and pathetic things Kline will say in the months to come of his withdrawal, I'll  keep you posted!

None of these things should ever come out of your babies mouth and I hope to hell you never hear your baby say them!  If you do hear some of these thing, you may want to look into red skin syndrome, aka, topical steroid addiction withdrawal.

One sad mama, xxoo Loren