Stop topical steroid abuse!

Saturday, May 12, 2012

A very bad state of Flare!

(Here is a picture of kline and I in the hopital the day he was born, notice he was already haing rashes and red skin, could he have been already addicted becasue of my massive amount of clorbetasol (a high potency topical steroid) used during pregnancy and while breast feeding, is this even eczema?  Dr. Rapaport said that babies do not come out with eczema, the delelope it a few months later...hmmmmm, very interesting!) ((also, please don't mind my huge breastfeeding boobs, they were bigger than the kids head, note I said were!! ;0)  )

 This blog has been a lifesaver for is cathartic and a great vent,sorry for all the cussing and rants!  And I pray it will save at least one person from our hell.

So, thank you all for listening to me and praying for us!!  It is so great appreciated and needed!

Kline's up date:

We are in week 11 of topical steroid withdrawal hell!  And auto correct if you change hell into he'll, one more time I will throw you across the room!! ;-) He is in a very bad state of flare....he is oozing most of the time From tummy, knees, elbow and nipple.  And I must say even though I love my baby with all of my heart, tickling his oozing body is really gross. The ooze is sticky and smelly and just should not be coming out of him!!!! He is not sleeping during the night at all, and I mean at all....we are up till 6 or 7am and then he sleeps till 11am or some days even 1pm.  Crazy how the itchy bastard takes over his body even more so at night. 

 Others that have suffered from red skin, say that at week 16 things start to improve some.....come on baby!  5 weeks can not pass fast enough!  He did let me put him in the bath yesterday and put vasalean on him, yeah, which seemed to help his scabs.  But everything is a fight and the first 5-10 minutes in the tub are terrible with the burning and itching! Then he will not get out, we are talking hours, because it burns and itches so much when he gets out!  Very typical for red skinners.  I pray that he will not remember any of this, but I hope it will make him a kinder person and more compassionate to others! 

Sleep well, itchy little bastard everywhere....and when I say that I am not talking about the person, I am talking about the itchy beast that takes over their bodies!

Xoxoxoxoxoxooxoxox Loren